How are those of us who are on disability-related programs (SSDI, SSI, Medicaid) preparing?

Hi all,

I am on the programs listed in the titles and am extremely worried about the future of them. I am on numerous meds that cost thousands a month with no coverage, I have no income outside of disability (due to being disabled, of course).

What are we doing to prepare? Or any ideas from those who aren't on the programs on how to prepare?