Danced gently for a few minutes on NYE

I was a dancer before I got sick.

My girlfriend and I have started a tradition of watching the ball drop in Times Square for NYE on TV.

Right after it drops, they always play “New York, New York”. It’s one of my favorite songs and I used to sing it a lot when I was a kid.

Last year I sang along and my girlfriend and I were able to gently slow dance for part of the song. This year I’ve made a significant amount of progress, I would say I’m severe but have more days bordering on moderate.

This year I just got up and started dancing to New York, New York as if I was a showgirl on Broadway. A very tired showgirl who can dance very gently, but I still had pretty good technique. My girlfriend was blown away. She took a video. I haven’t danced like that in years.

I sent the video to my mom and she says she keeps watching it and crying happy tears.

I can’t do that every day and I am having a bit of weakness in my legs today but no PEM so far.

I wish you all a happy new year. I hope 2025 brings minimal pain and as much happiness as possible. ❤️